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    Rosacea patients confused and worried

    Message board analysis offers lessons to improve patient care

     

    Information gap

    The study misses recent developments in rosacea treatments since the forum questions were posted more than two years ago. According to Dr. Alinia, a new generation of FDA-approved topical creams for rosacea subtype 1 may have improved things for patients over the past one to two years.

    What are the lessons of the study? Dr. Alinia says the findings reveal that some rosacea patients suffer from confusion and frustration.

    “They may rely on unreliable sources of information, and some turn to over-the-counter drugs because they don’t have money or insurance to pay for medical care.”

    When they do work with physicians, patients may feel unsatisfied by instruction about diet, skincare products, treatment and side effects, he says. “Many patients like to be more involved in the course of their treatment”.

    In terms of information, physicians “should at least provide each patient with reliable websites, booklets, anything that can help them,” he says. In addition, “they should provide more information about proper moisturizers, sunscreen and foundations. The majority of rosacea patients are women, and they should be given information about how to use makeup and how they can combine moisturizers, sunscreen and cosmetic products.”

    In the big picture, “as patients trust their physicians more, their adherence to medication will be higher. In those who have better adherence to medication, the progression of the disease is slower and the chance of relapse is lower.” 

    Randy Dotinga
    Randy Dotinga is a medical writer based in San Diego, Calif.

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